Posts tagged "#kudoshealthday"

Kudos Health and Findacure are hosting the second #KudosHealthDay for patients and patient groups.

Kudos Health and Findacure are hosting the second #KudosHealthDay for patients and patient groups. The topic this time is social research and how to go about it. Whether it be to assess the impact of a project, identify a community’s research priorities, or collect evidence on the burden of disease on patients and their families, social research can be very valuable to the work of rare disease patient organisations - but getting started can be a difficult process. Kudos Health are working in partnership with Findacure to deliver this workshop, which will cover what social research is, how patient organisations can benefit from conducting social research, best practice, and how to avoid common pitfalls. The workshop will conclude with an interactive forum, which will help patient organisations to plan and oversee their next social research project. The workshop is free to attend. Please contact vbalk@kudosresearch.com for more information and to register.

KudosHealthDay -Getting Patient Groups Ready for GDPR -Free to attend

#KudosHealthDay -Getting Patient Groups Ready for GDPR

This is a free invite only event for patient groups, please contact: vbalk@kudoshealthresearch.com if you want to be included.

The General Data Protection Regulation (GDPR) is the most significant change to data protection in the UK and EU since 1995. Designed for the digital age, with strengthened individual rights and greater business accountability, it will impact organisations of all sizes processing personal data.   

The new regulation will be enforced in all EU Member States from May 2018 meaning that compliance must be a top priority for UK-based organisations.  It’s vital that patient organisations are ready to meet the new obligations and responsibilities that the GDPR will bring, especially in light of decline in public trust if data protection responsibilities not met as well as the more robust enforcement regime under the GDPR.

Our GDPR expert speaker will talk about the impact of GDPR and how organisations need to prepare for this important change of data protection legislation. 

She will offer advice and tips on best GDPR practice. Her presentation will take around 60 minutes followed by a Q&A session of around 30 minutes. 

Volker Balk, Head of Kudos Health will advice on what to do next and where to find relevant information for patient groups to achieve compliance.

Findacure will provide an update on their important work. Findacure is a UK charity that builds the rare diseases community to drive research and develop treatments.

The workshop is hosted by Kudos Health and free to attend. This event is to support and empower patient advocacy and patient groups.

Light refreshments will be provided and the building has disability-friendly access. The closest station is Stratford which also has disability friendly access.

This is a free invite only event for patient groups, please contact: vbalk@kudoshealthresearch.com if you want to be included.

Register here

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